Living with Albinism

A personal look into the subject of Albinism. A three year environmental portrait project aiming to highlight this rare condition and some of the issues associated with this congenital disorder

Typically all those photographed for this project have their own very personal, intriguing and sometimes-traumatic stories, which will all featured in the Sunday Times Magazine article who published my project, not long after I had finished my last subject.  Apart from the physical challenges of albinism it also brings social and cultural challenges. They face discrimination, violence, ridicule and even dangerously superstitious legends that cost human lives.

Hollywood has also played its part in helping to portray albinism in a negative and misrepresentative way. From 1956 right up to the ‘The Da Vinci code’ in 2006, albinos have been portrayed as villains, murders, hideous monsters, merciless and violent, or a product of incest. There is also a misconception that all Albinos’ are scary and mentally challenged.

In some African societies the killing of Albinos' has been taken to new extremes, where they have been murdered for their body parts as ingredients in rituals for magic potions. 

This project aims to highlight individuals living with albinism, I also hope to enlighten and educate the viewer. Not enough is known about the condition or about the every day circumstances affecting these peoples lives.

john Ferguson